Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Understanding the family perspective on the storage, sharing and handling of family civic data
Show others and affiliations
2018 (English)In: CHI '18 Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems, Association for Computing Machinery (ACM), 2018Conference paper, Published paper (Refereed)
Abstract [en]

Across social care, healthcare and public policy, enabled by the "big data" revolution (which has normalized large-scale data-based decision-making), there are moves to "join up" citizen databases to provide care workers with holistic views of families they support. In this context, questions of personal data privacy, security, access, control and (dis-)empowerment are critical considerations for system designers and policy makers alike. To explore the family perspective on this landscape of what we call Family Civic Data, we carried out ethnographic interviews with four North-East families. Our design-gamebased interviews were effective for engaging both adults and children to talk about the impact of this dry, technical topic on their lives. Our findings, delivered in the form of design guidelines, show support for dynamic consent: families would feel most empowered if involved in an ongoing co-operative relationship with state welfare and civic authorities through shared interaction with their data.

Place, publisher, year, edition, pages
Association for Computing Machinery (ACM), 2018.
Keywords [en]
Big data, Boundary objects, Civic Data, Data privacy, Data security, Data sharing, Design games, Dynamic consent, Ethnographic interviews, Family Civic Data, Family design games, Family research, Healthcare, Personal data, Social care, Ubicomp, User-centered design
National Category
Social Work
Identifiers
URN: urn:nbn:se:kth:diva-228564DOI: 10.1145/3173574.3173710Scopus ID: 2-s2.0-85046958324ISBN: 9781450356206 ISBN: 9781450356213 OAI: oai:DiVA.org:kth-228564DiVA, id: diva2:1210385
Conference
2018 CHI Conference on Human Factors in Computing Systems, CHI 2018, Montreal, Canada, 21 April 2018 through 26 April 2018
Note

QC 20180528

Available from: 2018-05-28 Created: 2018-05-28 Last updated: 2018-05-28Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textScopus

Authority records BETA

Balaam, Madeline

Search in DiVA

By author/editor
Balaam, Madeline
By organisation
Media Technology and Interaction Design, MID
Social Work

Search outside of DiVA

GoogleGoogle Scholar

doi
isbn
urn-nbn

Altmetric score

doi
isbn
urn-nbn
Total: 25 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf